Thursday, February 6, 2014

Urologist Appointment

I can tell that people were praying for our appointment with the urologist yesterday. Lydia has had a cold and was fussy all day. Yet she was PERFECT for the whole appointment- happy and charming the nurses and techs. Lydia had another ultrasound of her bladder and kidneys. Her first scan when we were still in the hospital showed that her kidneys were small and her bladder was very large. Her ultrasound yesterday showed that her kidneys have caught up and are now an appropriate size. We are thrilled with this news. Thank you for praying. God is at work and He is good!  

We still don't know what type of issues she'll have with her bladder yet. The urologist is having us wait until May to do a test that will measure the pressure in her bladder. Too much pressure in her bladder would cause urine to back up into her kidneys. However if her bladder can't handle too much pressure then she would be leaking urine.  I don't really want her to deal with either issue! But I can't worry about things we don't know yet. So for now I will be happy with our good news, enjoy my precious daughter, and refuse to worry about the future.  God will help us be ready for whatever we have to deal with when the time comes.  Now is not that time!

Bath Time!

Monday, February 3, 2014

Lydia's Progress

My mom is telling me that I need to write something because lots of people are asking about Lydia!  I never cease to be amazed, and incredibly humbled, at how many people care about out sweet girl. Lydia LOVES to be held, so finding time to write is tricky.  Also, I seem to be having trouble putting coherent thoughts together so don't expect too much from this update! No deep thoughts today!

Last week we went to see the neurosurgeon to have a head ultrasound. The neurosurgeon showed me all three of the head ultrasounds that Lydia has had.  The ventricles in her brain (where they are watching for extra fluid to accumulate) have increased in size a little bit. However the MD feels that it's only a slight increase and probably just her body trying to adjust to a new way of dealing with her cerebral spinal fluid or CSF. Due to her spinal defect her body leaked spinal fluid out the hole in her back prior to surgery.  Surgery, although necessary, disrupted her body's way of dealing with the CSF which is why they are concerned her head may swell. The neurosurgeon was happy enough with how things were looking that we don't have to have another head ultrasound until the end of March. He was also very impressed with Lydia's movement in her extremities and her response to sensation in her feet. We were freed from our 60 minute time limit in the car seat and she doesn't have to sit on the foam donut anymore.  The MD said her surgical scar is looking great and we are no longer doing dressings which is a huge relief.  God is so good and we are so thankful for a good report.

Now we see the urologist this Wednesday and Lydia has to have scans of her kidneys and bladder again. This is the area where I am seeing some problems with little Lydia.  If you could please be praying for a good report on Wednesday, that I would be able to ask the right questions, and that we would have a clearer picture of how to help Lydia.

Thank you again for your care, concern, prayers, and notes of encouragement.  We are so grateful for every one of you!

What are you looking at?